There was no consistent effect on lung function, although one small study reported biofeedback-assisted breathing re-training helped improve some lung function measurements.
There’s some evidence that relatives accept genetic testing for carrier status using home-based information leaflets and testing.
Some evidence that behavioral therapy improves emotional outcomes in people with cystic fibrosis and their caregivers.
Psychoeducational treatment improves knowledge in the short term.
It also appears that educational and behavioral treatments can aid nutrition and growth.
The bottom line?
10 years ago, the life expectancy of a person with cystic fibrosis was about 18 years. Today it’s 35 years.
As people with cystic fibrosis survive longer, there’s a need to identify treatments to help them meet their needs and improve long-term management. The treatments reviewed here are largely concerned with those issues.
John Russo, Jr., PharmD, is president of The MedCom Resource, Inc. Previously, he was senior vice president of medical communications at www.Vicus.com, a complementary and alternative medicine website.